SHHL - SACRAMENTO CHAPTER

 
Jim Ray, President

A New Star is Born for SHHL

The chapter members are the "stars" with each casting their own shadow

(916) 383-3777

 

“The Good Vibes” Newsletter

A Publication of the SHHL-Sacramento chapter

For April, 2004

3rd Edition

Featured Guest Speaker

The featured guest speaker for the April meeting of our SHHL-Sacramento chapter will be, as mentioned in last month’s [February] edition of “The Good Vibes” is Ms. Stacy Meza, CEO, of the Hearing Aid Dispensers Bureau (and Telephone Medical Advice Services Bureau), which is under the DCA, or California State Department of Consumer Affairs. A editorial correction needs to be made for the readers in that this bureau - HADLB - does NOT work under the SLPAB whose CEO was our featured guest speaker of last month, Ms. Annemarie Del Mugnaio, who delivered an excellent speech describing the duties and functions of her board. As Stacy pointed out in a clarifying e-mail to me, the two boards share similar missions, e.g. both boards license some of the same people but are completely independent of each other. As mentioned in the February edition of this publication, Ms. Meza is the one to ask any/all questions or concerns about hearing aid dispenser and / or individual audiologist practice(s) or behavior encountered while attempting to purchase or repair hearing aid(s) that are not meeting your hearing loss needs in your quest for an easier, more fulfilling and satisfying role in coping with the hearing world of today.

 

Helpful Hints for Purchase of Easy-to-Use Telephones

 

I discovered an excellent article summarizing what one should look for in testing/ [purchasing a telephone that will enable one to communicate intelligently taking into account the accommodation provided by the telephone to allow for one’s hearing loss. Please note that this article was written before the development of the CapTel phone by Ultratec which is currently undergoing extensive evaluation by a number of states, including California, at the present time.

Hooked on Phones

by: Cindy Shapiro

cinshhh@chartermi.net

The MIIGANIAN

Michigan Self Help For Hard of Hearing People

Harry Potter’s owl-tooled and wanded world may not need a telephone to get a message swiftly to friends Hermione and Ron, but we Muggles (humans) regardless of level of hearing, have yet to cut all our telephone cords.

Although many of us have discovered the internet as a communication tool,

even devoted e-mailers find reasons to fall back on using the telephone. A

call to a doctor, dentist, plumber or pizza outfit, not to mention the

possibility of a genuine emergency, is sufficient reason to stay connected

to our telephonic culture. This short discussion will graze the surface of

the large and ever-changing pool of phone options for persons with hearing

loss. Combined with the variety of phone choices, there are many types and

degrees of hearing loss. This means that consumers should consider many

factors when choosing a phone to meet their needs. The long and short of it

is that one size does not fit all.

HOW MUCH AMPLIFICATION IS ENOUGH?

The unit for measuring the loudness of sound is a decibel (dB). For comparative purposes, a 5 dB loudness would be that of a hearing person understanding a whisper 5 feet away. For those who have a mild or moderate hearing loss, a boost of up to 25 decibels is usually enough. A severe or profound hearing loss in the important speech frequencies may require a louder phone, one that delivers 30 to 48 dBs of sound, for example. A word of caution: louder is not always clearer. Using a T-coil equipped hearing aid compatible phone may provide sufficient amplification and clarity without requiring maximum loudness. (Want to know more about T-coils? See box below.)

Hearing aid users are advised to ask their hearing care provider for

Information about the benefits and costs of using a hearing aid with a T-coil

that can be used with other wireless and hardwired hearing amplification

systems as well as with hearing aid compatible phones. Select cell

phones that can be used through the hearing aid, which is tailored to one’s

individual hearing loss, rather than having to remove the hearing aid in order to use the phone. (Note: I personally use my T-coil setting on my hearing aid in order to hear with greater clarity on my cell phone at the same time severely curtailing all outside interfering sounds around me)

 

DO YOU HAVE A T-COIL (ALSO CALLED TELEPHONE SWITCH or TELECOIL) ON YOUR HEARING AID?

With a T-coil, you can use neck loops or silhouettes to enhance the quality

and volume of the sound from the phone, if the phone is hearing aid compatible and/or if the phone has the appropriate audio output jack. (Unsure about the meaning of neck loops and silhouettes? See box below.)

Neck loop: A loop of wire that goes around the neck and plugs into an audio

output jack. The neck loop generates a magnetic field that transmits sound

directly to T-coil equipped hearing aids.

Silhouette: A small, flat, plastic encased induction mechanism that plugs

into a jack and is placed between a behind the ear (BTE) hearing aid and the

head. The silhouette transmits sound directly to the hearing aid. Reminder:

The hearing aid’s T-coil needs to be on when using a neck loop or a silhouette.

Jacks on Phones:

There are two types of jacks and plugs for connecting accessories to phones.

The larger jack (1/8 inch or 3.5mm size) audio jack accepts neck loops, silhouettes and headphones.

The second type of jack (3/32 inch or 2.5mm size) accepts accessories that

contain a small microphone which is added to a silhouette or headset/earphone, allowing for hands free operation...

DO YOU HEAR SOME SOUNDS BETTER THAN OTHERS? Some people can improve their understanding of telephone conversations by using a phone that features tone/pitch adjustments.

DO YOU WANT TO USE A PERSONAL LISTENING SYSTEM WHEN USING THE PHONE?

A device called the Telelink allows users to connect their standard home

phone to a hearing amplification device, be it an FM system such as a

Comtek, Listen, Phonak, Seinheisser or William Sound, or a hardwired

Pocketalker or SounDirector. The Telelink works with standard phones (cord

connected to receiver) where the keypad is separate from the handset.

DOES THE NATURE OF YOUR HEARING LOSS REQUIRE TEXT BASED

COMMUNICATION?

Residual (what’s left) hearing may suffice in face to face conversations but

hard of hearing people may require a text-based format for all or some of

their telephone communications.

When choosing a phone you have to decide your priorities. The following

checklist may be useful.

? Degree of amplification

? Tone adjuster

? Cordless or corded phone option

? Use of accessories and their corresponding jacks

? Size of keypad for easy keypunching

? Cost

Finding the right phone can lead to more independence and an improved

quality of life for persons with hearing loss. Time spent investigating and

exploring phone options and possibilities can reap many rewards.

Cindy Shapiro, M.A., M.S., a certified teacher, is leader of the Northern

LightSHHH Chapter in Traverse City and owner of Visions Unlimited, a

consulting business for hard of hearing/deaf assistive technology. She

especially appreciates unidirectional microphones on assistive listening

devices enabling enjoyment of meals at her favorite Thai restaurants.

For those who have access to either/both the e-newsletter and the website, more references on this subject are listed as HPERLINKS which can be clicked on with your right-hand mouse to bring up more information on the subject of proper telephone selection consistent with your degree of hearing loss.

Basic Sign Language Class for Members/Guests

 

Several members have expressed an interest in attending an elementary/review class in basic SIGN LANGUAGE that would allow one another to effectively communicate basic needs, e.g., kitchen, shopping, banking, in this expressive non-verbal iconic, i.e., self-explanatory signs, mode of communication with our deaf and HOH friends who rely on this form of communication as their preferred method of communication with the hearing world. We would need, I think, at least 15-20 individuals, from wherever; to express interest before NorCal would be interested in providing a teacher from among the ranks of interpreters that staff this organization. I talked about this subject with Ms. Angela Foreman of the CI (Cochlear Implant) support group that meets regularly at NorCal on the third Saturday morning of each month (from 11 A.M. to 1 PM) for those interested in attending. The next monthly meeting is scheduled for Saturday, May 22. The free-flowing, animated exchange of ideas and opinions is amazing; the information gleaned among the members and guests about cochlear implants was AWESOME.

Financial Crisis for Provision of Chapter Services

Finances for the chapter, in the form of unpaid dues, is becoming a REAL ISSUE: your chapter has incurred considerable expenses in maintaining the prerequisite chapter web presence on the internet as well as the mailing of the monthly newsletters to all members, in its different forms depending on the preferences of the individual members. Included below is a simple form that you can clip out and either mail it to the chapter treasurer, Judy Ray, at the address given on the form or clip your check to the form and bring it with you to the April 10th chapter meeting. Negotiations by your chapter to obtain funding for operating expenses are still pending from two different sources, but the outcome is still up in the air as of this moment. As you are well aware, the three levels of paid membership in this organization are the following: SHHL-Sacramento chapter dues are $12.00/year; SHHH-CA (state level which includes the bimonthly newsletter) is $10.00/year; and the national, or SHHH-Natl., is $25.00/year which includes a subscription to “Hearing Loss” monthly magazine, which is considered by many experts in the field of Hearing Loss and Disability to be the foremost consumer magazine for hearing loss in the world. Of course, one can join at any level: one, two, and/or all three. The total cost for joining all three levels would be $37.00/year which is a real bargain nowadays. A form for filling out and submitting your dues is available at the end of this newsletter.

 

Ototoxic Drugs and Your Ears

There are many, many drugs, both prescription (by unwary physicians) and OTC (Over-The-Counter), that one would never imagine could do irreparable harm to your ears in a number of ways. One of the primary reasons, as a renown and respected pharmacist in the Sacramento area informed me, is that the pharmaceutical companies, while aware of the relative ototoxic, i.e. causing ear damage, effects of many of their products, don’t want their consumers to be aware of this frightful problem. Dr. Neil Bauman has done extensive studies on this subject and has written several books documenting the effects of many very common drugs that can damage one’s ears severely if taken unknowingly. The following information is a summary of an article (published in 2002) that is available in its full length on his web site at www.hearinglosshelp.com/ototoxicdrugs.htm . For those without access to the Internet, if you will let me know I most certainly will be glad to mail you a copy of the complete article by Dr. Neil Bauman.

At the present time, Dr. Bauman has identified 663 available drugs on the market that can be considered to be ototoxic: of the top 200 most widely prescribed medications written in America in the year 2000, 83% of them can be considered to be ototoxic. Such ototoxic side effects, by affecting your ears, can potentially have enormous deleterious consequences on our sometimes fragile lifestyles as persons with hearing loss. These damaging effects can be divided into three main categories according to the ear site affected, for clarity of understanding.

Cochlear side effects:

Tinnitus: ringing in your ears

Hearing loss

Speech discrimination threshold, or SDT, problems leading to distorted hearing without understanding what is being said.

Hyperacusis: normal sounds are too loud

Feeling of fullness in your ears

Auditory hallucinations: hearing imaginary music/voices that can’t be understood.

Vestibular (balance) side effects:

Dizziness

Vertigo: the room spins, or you feel like your spinning.

Ataxia: staggering gait or walk

Nystagmus: eyes jerking uncontrollably horizontally, i.e., side to side

Labyrinthitis: inflammation, or infection, of the entire inner ear.

Oscillopsia: bouncing vision

Other vision problems: blurred vision; focusing problems; depth perception difficulties in observing moving objects, etc.

Other Ototoxic Side Effects: central processing, or nervous system, disorders; excessive, often painful ear wax (cerumen) accumulation; otaglia or ear pain; and otitis media, or middle ear infections.

Risk Factors for Ototoxic Side Effects (from your medications):

You are either very young (including unborn children) or are over 60 years of age, i.e. a sexy senior citizen.

You already have pre-existing ear damage: previous ear infections; sensorineural hearing loss; balance problems, or some other form(s) of ear damage, e.g., noise.

You have liver and/or kidney problems, whether pre-existing, or as a consequence of subsequent drug treatments (certain groups of drugs are known to be toxic to liver, kidneys, or both).

You are either extremely sensitive or have a low tolerance for drug therapy.

You may be at risk if an ototoxic drug is not administered properly: wrong form of drug; too high or too fast drug administration resulting in drug over dosage.

You are dehydrated or have a fever; both of these conditions put you at a higher risk for ototoxic side effects of subsequent drug therapy because of potentially suppressed immune system response.

You have had previous ear infections and are in generally poor health, including POOR NUTRITION.

You have had previous radiation treatments on your head and/or ears.

You are overweight.

You are unknowingly taking, or have in the past, two(or more) ototoxic drugs that are toxic to the kidneys (nephrotoxic)

Here’s How You Can Reduce Your Risk When Taking Ototoxic Drugs

Be aware of these “early warning signs” of ototoxicity (in the order of most likely to occur):

· Ears begin ringing (tinnitus)

· Your existing tinnitus either becomes worse or you hear a different type of ringing in your ears.

· You feel pressure in your ears, i.e., like your head is plugged up.

· Your hearing either gets worse or begins fluctuating.

· You develop vertigo or a spinning sensation in your ears.

If any of these above 5 listed symptoms develop while taking an ototoxic medication, stop the medication immediately and call your physician.

Tell your doctor that you are hard of hearing (especially if you suffer from either sensorineural hearing loss and/or suffer from balance problems: this is extremely important in that this indicates that you may be more sensitive to ototoxic drugs than the general population.

Always discuss, if the doctor doesn’t, any possible side effects (especially ototoxic in nature) before beginning a regimen of any new medication(s) for the first time.

Use the same pharmacy to fill all your prescriptions, including over-the-counter drugs or OTCs, so that the pharmacy can keep track of the drugs and their dosages and alert you of any potentially dangerous drug combinations.

Always drink plenty of fluids so that you don’t become dehydrated while taking prescribed medications.

If you have kidney problems, tell the physician (and other healthcare professionals) so that they can carefully monitor the progress of the drugs so that you don’t accidentally end up with a dangerous overdose that could damage your ears.

The remainder of the article contains technical information about certain drug combinations that should be avoided to minimize any possible ototoxic effects.

Very Important Note:

[Dr. Neil G. Bauman, the book’s author, was born with a severe hereditary hearing loss. He is a hearing loss coping skills specialist, author, and speaker on these subjects: he is not a physician and does not prescribe/endorse treatment for medical problems. This excellent article written by him is intended for educational purposes only.]

The Bioethics of Stem Cell Research

At the present time, there is considerable controversy over the scientific ethics of using human embryos as subjects of stem cell research in pioneering research to search for curative measures for such inheritable syndromes as Parkinson’s, Mongolism, Huntington’s Chorea, Juvenile Diabetics, and similar diseases. President Bush’s decision to limit human stem cell research to just the approximately 75 viable human stem cell lines for this type of genetic research has revived this debate once again. The use of human cloned stem cells in the regeneration of damaged (by excessive noise, etc.) or diseased cochlear cilia or “hairs” is a very real possibility. Preliminary research in certain adult mice strains with damaged cochlear cilia has shown some success in accomplishing such a feat for those mice by the use of mouse stem cells grown in the laboratory. For humans suffering from sensorineural hearing loss; this could one day be a viable alternative to today’s marvelous CI (Cochlear Implants) surgery in which an “electronic” cochlea is used to replace destroyed, non-functioning cochlear “hairs”. As an ordained minister with an extensive scientific (microbiological/biochemical) clinical research background, I feel an obligation to state my feelings about this area of bioethical genetic research. The concept of “moral authority”, i.e., a newly-formed human embryo is imbued with a soul at the moment of conception in the mother’s womb, is a theological argument used by some, but not all, bioethicists and other theologians to protest against the use of such human stem cell lines for medical research. The origins of these human stem cells in the beginning was from human embryos that were destined to die soon after conception due to unfortunate events in the genetic information used to form such embryos. Rather than ruthlessly destroying these cellular bodies, which obviously had no chance to ever reach the stage of fully-grown entities capable of sustaining independent lives on their own, the wisest and most prudent course would be to convert these cells into useful genetic elements for

the future betterment of human (and animal) kind.

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SHHH ANNUAL MEMBERSHIP DUES FORM

1.­­­____ Annual dues ($12.00) for membership in Self Help for Hard of Hearing, Sacramento Chapter are now payable for 2004.

2.___­_­­­­­­­­­ I can order the SHHH Californian for you which comes out every two months for $10.00 per year.

3.____ The SHHH National membership is $25.00 per year and with this you get all the benefits of being a national member along with the Hearing Loss Magazine which comes out every two months. I can order this for you also.

Please check the boxes above, fill out the following form and mail it, together with a check made out to SHHH-Sacramento Chapter. Send to the treasurer, Judy Ray at 8665 Florin Rd., #89, Sacramento, CA 95828. Or you can catch me at the next chapter meeting.

NAME: ________________________________________________________

ADDRESS: _____________________________________________________

CITY: ____________________ STATE:______ ZIP CODE:____________

PHONE: _______________________ FAX: _________________________

E-MAIL:______________________________________________________

Total Enclosed: $__________


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